About Us

Who Are We?

 

We are a Western Australian peer based support network for people living with Endometriosis in Western Australia. We encourage positive relationships and social networking through social events and activities. Endometriosis Perth Sisterhood of Support started as an on-line Facebook support group on 2013 and is now branching out into the community, reaching out to women who feel alone with this very isolating disease. We want people with endometriosis to know they are not alone. We are your Perth Endo Sisters.

 

 

What is Endometriosis?

 

Endometriosis is a disease where areas of tissue that are similar to the endometrium (the lining of the womb) are found in places outside the womb. This "rogue" tissue is stimulated by the body's hormones, and the immune system responds by producing inflammation and swelling, which can cause severe pain, scarring and adhesion's (where organs and other structures in the pelvis stick together). Endometriosis can result in infertility and can lead to loss of employment, social isolation and mental health issues. 1 in 10 women live with endometriosis and it takes on average 7-10 years for diagnosis.

 

 

What Do We Want?

 

We want you to develop friendships, to learn about, talk about and help raise awareness of endometriosis. We want to share resources, to work with other organizations to educate and empower. 

Our Administration Team

 

Joanne McCormick

Founder / Co-Lead / Admin

Joanne McCormick

Founder / Co-Lead / Admin

 

About Us

Our Mission

To support and empower people living with endometriosis in Western Australia and to raise awareness and promote early diagnosis of endometriosis.

 

 

 

Who are we?

 

We are a Western Australian volunteer and peer-based support network for people living with Endometriosis in Western Australia. We encourage positive relationships and social networking through social events and activities. We provide support to people living with endometriosis in Western Australia

 

 

What is Endometriosis?

 

Endometriosis is a disease where areas of tissue that are similar to the endometrium (the lining of the womb) are found in places outside the womb. This "rogue" tissue is stimulated by the body's hormones, and the immune system responds by producing inflammation and swelling, which can cause severe pain, scarring and adhesion's (where organs and other structures in the pelvis stick together). Endometriosis can result in infertility and can lead to loss of employment, social isolation and mental health issues. 1 in 10 women live with endometriosis and it takes on average 7-10 years for a diagnosis.

 

 

What do we want?

 

We want you to develop friendships, to learn about, talk about and help raise awareness of endometriosis. We want to share resources, to work with other organizations to educate and empower. 

Meet our admin team

Dr Katya Fleming

Facebook group Moderator

- Facebook group moderation

- Event facilitation

About Katya

'My endometriosis journey started very young at age 14. Despite my local GP having very poor knowledge of the condition my mum and I persisted in seeking help and I was clinically diagnosed with endometriosis at 15. It was surgically confirmed at 21.

I have been very lucky so far. Almost 8 years after my first surgery I have a wonderfully understanding husband and two beautiful daughters. My experience with endometriosis has given me the drive to pursue a career in medicine myself. I work full time as a junior doctor and I study a Masters of Public Health with the aim of helping other women with endometriosis. 

In the future I hope to specialise in the excision of endometriosis. But I hope that by increasing awareness, fewer ladies will need advanced laparoscopic surgery​.'

When you're not working or volunteering where will we find you?

'Hanging with my family, making my way through my pile of sci-fi/fantasy novels, or playing xbox'

Have you had a funny endo moment?

'While chatting about my condition at work with a group of fellow female doctors, I discovered all 4 of us have endo!'

Joanne McCormick

Founder / Co-Lead / Admin

- Online Management

- Event coordination & facilitation

- Newsletter

- Webpage

- Social media 

About Jo

'I was diagnosed with severe Endometriosis and Adenomyosis in my early 20's. After 4 surgeries in Perth I traveled overseas for a 5th surgery in Singapore in 2015. I work part time in the finance sector and this year hope to complete my diploma in community services. Until a cure for endometriosis is discovered my priority is  to  work with people in the endometriosis community to provide accessible support & resources to others.'

When you're not working or volunteering where will we find you?

'Hanging out with my dogs, drawing/painting, at the beach, spending time in nature, listening to music, meditation class with Mo or travelling.'

Have you had a funny endo moment?

'I've certainly had a funny endo sister moment. My husband and I went to pick up Mo from one of her operations & in a desperate attempt to cheer her up I made a costume and later realized I did in fact use a disposable head pan as a top hat.'  

Monique Alva

Co-Lead / Admin

- Online Management

- Event coordination & facilitation

- Facebook group administration

- Social media

About Mo

'I was diagnosed with Endometriosis and PCOS at 22 after 1 1/2 yrs of hospitals and doctor visits. When I was 26 I was also diagnosed with Adenomyosis. I have had 6 surgeries in 7 years.

The average diagnosis time is 7-10 yrs and I find that extremely unacceptable, which is why I'm so passionate about raising awareness and educating people about endometriosis.

I work full-time in the mining services industry for a very supportive employer. This is another reason why I fight for awareness. I have also just started my certificate IV in community services to help me better support the support group.'

When you're not working or volunteering where will we find you?

'At meditation class or yoga with Jo, listening to music, hanging out with my friends or reading a book.' 

Have you had a funny endo moment?

'Yes, After my last surgery I was itching to go home so called my partner in crime Jo and her lovely husband Luke to come break me out of hospital. While we waited for my discharge paperwork, Jo and Luke were trying to cheer me up by dressing up in items we found in my room while I was busy trying to steal coffee and sugar packets whilst hopped up on pain meds.'  

Members & Advocates 

Follow the journeys of our members and advocates

 

Life after Billy 

I don’t have Crohns, nor do I have an Inflammatory Bowel Disease. Heck, I probably don’t even have Irritable Bowel Syndrome. I have Endometriosis and I have had an ostomy. Two, actually.

Endo Bonnie

Follow one of our Perth Endo Sister's through her journey with Endometriosis.

1 in 176 million & counting

I decided to call my blog '1 in 176 million and counting' because we're all probably aware now that there are millions of undiagnosed ladies out there too so I wanted a name of inclusion for those who are yet to start their official journey 

Wellbeing at work Dr

Rachel's blog explores chronic illness & wellbeing at work. Follow her research and her journey.

Layla Grace 

I've had to grow up very fast and deal with a lot of adult things, like thinking about freezing eggs, if I can have kids, getting a hysterectomy at a young age, having invasive tests etc, I can't be uncomfortable with talking about personal things. 

Kath Mazzella

Multi Award winning advocate and public speaker

  • Order of Australia Medal receipient

  • WA Senior of the year 2012

  • Western Australian Senior of the year 2018

Support International Gynaecological Awareness IGAD 10 September #‎undiesforbetterunderstanding/undies quilting community campaign

Check out Kath's interview on The Couch!

Jasmine Muir

Welcome to Jasmine's Endo Life check out my youtube channel here :

https://www.youtube.com/channel/UC_cPaJTCW9ZNdN2QyugJJ1g  

I have just started a new youtube channel this week titled “Jasmine’s Endo Life” I have only uploaded two videos so far the first one is just introducing myself to the views and the second video is a rundown about Endo.  In the next few videos, I will be uploading as I go on will cover topics such as: 

My journey in being diagnosed (symptoms, misdiagnosis etc)

My life post-diagnosis (lead up to mental health PTSD, treatments)

Support networks (my family, friends, doctor, FB Groups)

How I keep track of my symptoms 

What to pack in a hospital bag 

 

 

I decided to start this channel, not for a sob story but to help myself have more of a positive outlook on life with Endo. When I was first diagnosed I couldn’t find too much that helped me understand that I wasn’t alone, I tried finding the podcast and youtube channels but I simply couldn’t find any or all the youtube ones where of people overseas. I hope I just might be able to reach out to someone one day that is also suffering to help them know that they are not alone. Although the Perth Endo Sisters group is fantastic and the first place I felt like I wasn’t a crazy person, so thank you guys so much for what you all do!

 

I would love the chance to work with the group members to hear their views on they would like to see in my videos and possibly in the future even feature this amazing group, all with permission of course. I have attached a link to my channel if you wanted to have a look at it. So far nothing in my two videos covers sensitive topics. 

 

Thank you for taking the time to read this,

Jasmine Muir 

Michelle Floate

Michelle is one of our endosisters, a naturopath, cookbook writer (author of 'My Endo Friendly Cookbook' & The Bikini Cookbook series) and photographer. Check out her blog and cookbooks! 

The Primary Hyper Aldosteronism blog

Life as a nursing student with endo, fibromyalgia and edgar the adrenal tumour.

In Bloom - by Abbey Thomson

'Finally an X marks the spot. They’ve discovered the fault, the dots, the glue. 


Once the knife’s cut through, they will burn away the pain and discomfort I’ve felt every day.


At least that’s what they said, but my stem has been unable to to hold up the weight of its
Flower. For months there is no end, no change, no success.


The water, fertiliser and sunlight is all there, “what is wrong with you! Stop being lazy and stand up straight!”


Weeds surround me and over grow me, they block all my light and rob me of my living my life.


Their roots become like an uncontrollable vine twisting and wrapping all around mine.


Restricted I feel, although my petals dream big, but I do not have the the stem of a strong stick.
Floppy and limp I carry on today, but my yellow petals will never fade.'

 

 Events - Perth

All Endometriosis Perth Sisterhood of Support events are volunteered & free! Thank you to our volunteers, community volunteers, donors & guest speakers who volunteer their time & resources to enable us to  provide free events for our members. 

Events

All Endometriosis Perth Sisterhood of Support events are volunteered & free! Thank you to our volunteers, community volunteers, donors & guest speakers who volunteer their time & resources to enable us to  provide free events for our members.