August 8, 2019

Image supplied by Dr Fleming 2019: Word-cloud 'what support groups mean to us' - collaboration with EPSS members

Earlier this year I had the great privilege of being invited to present at the Australasian Gynaecological Endoscopy and Surgery Society (AGES) Annual Scient...

April 7, 2019

They always say that pain is what makes us feel alive but what kind of lives are lived in constant pain?

A pain, a pain that doesn’t let us thrive

That doesn’t let us live our lives

That deprives

Us from feeling human

And I am strong,

I will live long,

But is it wrong,

To fear...

March 21, 2019

Look into my eyes,
And you’ll see me start to cry,
Because of what I’m made to endure,
All because of my BMI.


3 weeks of every 4,
I cringe and lay in pain,
My cries for help unanswered,
Instead made to feel ashamed.


As a country, Australia is growing,
Becoming Bigger,...

February 5, 2019

Rose has Endometriosis (obviously), which has definitely complicated our relationship at times. I’m writing this to give a bit more context as to how our relationship has stayed so strong, and to help others struggling with their partner’s Endometriosis. 

My name is Mar...

October 31, 2018

I have rarely talked about my health and experiences with endo. It is difficult for me to discuss it. I recently reconnected with my “endo sisters” and have found the courage to speak up. I hope it might help others in some way. This is the shortened version of my stor...

August 15, 2018

People don't see that your insides are a battlefield....


They can't feel the awful hormonal headaches or horrendous nausea. 


They can't experience the feeling of your ovaries being ripped apart.


They can't feel what I can only describe as a knife being stabbed up your...

July 19, 2018

Today I had a very heartbreaking and emotional meltdown in a completely out of the blue way. 
I was watching a film called Brain on fire were a young woman is struck with an unknown illness that no one could (or would) diagnose correctly.
I burst into tears. 

The flood...

July 6, 2018

(Warning this script does contain some offensive language)

When my wife asked what it’s like to have a teenage daughter with endo my immediate reaction was – in a blink of an eye and without thinking –F****ed, F****ed and more F****ed.

When I thought of writing this I to...

April 18, 2018

Recently one of our youngest support group members, Celestia 'Rose', shared what endometriosis means to her and how it has affected her education and life. Today we hear from Rose's incredibly supportive mum, Kimberley. 

We first met Kimberley, along with Rose's father...

April 11, 2018

Meet one of our younger support group members, Celestia 'Rose'. Endometriosis rendered her unable to attend school and only able to study from home between flares. Rose's symptoms started at around 11 years of age when she had a whole term off school with a “mystery st...

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