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My journey to relief: Travelling for endometriosis excision and pre-sacral neurectomy

April 29, 2017

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Childless by Choice & Endometriosis

April 23, 2017

There it is for the umpteenth time. The look. I despise that look. It says "No. You're wrong."



How could I possibly not want children? That's what she's thinking. That's what a lot of people think. But the difference here is that "she" is a gynaecologist and yet again her personal opinions are standing in the way of my getting treatment for a chronic disease I've been living with for a decade and that I will continue to live with for the rest of my life.



I've gone into this appointment, having learned from so many before, knowing that I'll be given the third degree. This time I'm prepared. I've written a four page script. It has three parts; 1. My understanding of the disease and the impact it has on my life. 2. All the research I've done on all the treatments I've tried, those I'm not willing to try and why, and every other treatment available that I have questions about. And 3. Why I don't want kids.


There are a plethora of reasons. Too many to list here but it boils down to the fact that I don't. And this is important because I'm not receiving the best possible solution to dealing with endometriosis in favour of preserving my ability to reproduce.


It seems to me that most treatments are geared towards women who are trying to have a baby or want one in the future. And that's a great thing for women who do. But what about those who don't? With the recent increase in research and awareness being given to this disease there will come a time when women will not have to choose but we're not there yet.


I've printed two copies of my paperwork, one to read from and one for my medical file, so that there is a record that I've asked, I've been thorough in researching my options, addressed concerns and begged for a solution. I have to, to ensure my pleas aren't dismissed. That it is recorded to show that I'm making an informed decision and that I haven't wavered in my choice or feelings in 10 years.


Imagine that. Imagine if you had diabetes, or arthritis or another chronic illness and having to go to your doctor prepared to fight for treatment, fight to end your suffering, having to make sure the notes are added to your file so that there is a record of your insistence to receive the best possible treatment to manage your quality of life.


Endo is a disease I’ll have to manage for the rest of my life. It's growing on my diaphragm, it hurts to breathe. It's growing on my bowel, there are times when I haven't pooped for up to 7 days. I've bled for 6 weeks s